Friday, October 5, 2007

Update....

Things seem to be slowing down a bit! Which is really nice because I need the rest! My chemo has been extending for another 4 weeks. My last day was suppose to be Oct. 11 but now it will be Nov. 8. No reason to be concerned about, it's just for dosage reasons. My doctor just wants me to get a full 12 rounds of Taxol and 8 rounds of Carbo. So this pushes back radiation to start the week of Nov. 12. I will have a PET scan sometime around the first of Nov. to re-evaluate my situation. I'm nervous about the PET scan but can't think about that now! I'll cross that bridge when I get there!

Ryder has 2 appts. next week, look for an update next week. A check-up with our pediatrician and a follow-up at Georgetown with the apnea clinic. I hope they take him off the monitor. It makes people nervous. I like it b/c if something were to go wrong, like if he stopped breathing, we'd know about it right away and could do something immediately. Even though I want him to off for convenience purposes, I'm nervous about having him off b/c then I'll be checking on him every 2 minutes to see if he is breathing.

Ella loves school!!!!!!!!!! She is so excited and wants to go everyday! She is learning so much and tells me all about it! We finally convinced her to get her haircut. She didn't want "to cut her hair all off", I think she thought we were going to cut her hair like mine. But somehow we got her there with no fight and she looks adorable. She is such a joy to me, always giving me hugs and kisses. She tells me everyday that my boo-boos will go away soon! She is my own special little cheerleader!

Pierce is talking about a storm, everyday he learns how to say a new word and loves to share it with us. He likes to sing and dance with The Wiggles. He is an eating machine....loves to eat and wants to eat constantly. Pierce has realized that Ryder is here to stay...he's very loving and wants to kiss him all the time but when I'm feeding Ryder, Pierce wants to hug and snuggle with mommy too. So I have to hold both my babies when feeling Ryder. It's quiet cute!

I have had a lot of swelling in my arm and we are concerned about developing Lymphedema. This is a condition of localized fluid retention caused by a compromised lymphatic system. It's not too bad right now but I'm going to go get fitted for a compression sleeve to help alleviate some of the swelling. Especially since I will be flying a couple of times in the next few months for work and the cabin pressure can increase the swelling, the sleeve will help decrease the swelling during flight. Just another not so wonderful thing that has entered my life since the big C word.
But for every not so wonderful thing that has entered in my life, I look for the other very wonderful things in my life! And trust me I have a lot more wonderful thing than not so wonderful. I'm very blessed and thank God for that everyday!

Take care!

6 comments:

Meg said...

I always new that Ella was a smart little girl! Even she knows the boo-boos will go away....just like we all do to!!! You are the strongest woman i know and I am honored to call you my friend!!!
Love ya!
-MEG

Unknown said...

Those certainly are some nice photographs of your beautiful babies. We are looking forward to seeing them and you towards the end of the month. Love, Rodger

Pray-er said...

Hi Jual - some time ago I was asked to pray for you by Jennie Isner. I send out an intercessory prayer letter each week and you have been on it. We celebrated the birth of Ryder with you and your successful surgery. We now walk with you through treatments. I was happy to read your comment about your own walk of faith. I am glad you are on the path. Your website is beautiful - I even used one of your pictures of the family in our letter one week so folks could put a face to you. What a gorgeous family. Keep up the good work and your positive attitude does so much in the healing process. Kathleen Ball

Byron and Jeanette Vorce said...

Just remember, the most important part of getting better is to BELIEVE you are getting better. KNOW IT in your heart and it will be! The mind is a very powerful tool as is prayer! The mind tells the body what to do and how to feel and prayer asks God to heal. Let your mind tell your body that it is well and healing and it will and let all the prayers from everyone heal you and that will come about also. I firmly believe this! I love you.
MOM

Amber Turner said...

Jual,
It is so wonderful to see your upbeat updates! You are doing so great! And the kids are adorable as well. Keep up those positive thoughts....lots of love, Amber

Angie said...

Jual,
I am happy to hear that you and the kids are doing just fine!
Angie