Saturday, October 4, 2008

Stage IV

I have stage 4 breast cancer. The goal of treatment will be to get my disease to become NED (no evidence of disease), which is the best case scenario or to at least stay stable. But Stage IV breast cancer is still considered to be terminal and incurable. How do I live my life under this dark cloud and continue to raise my 3 beautiful children and still laugh and plan and be a wife and work, and be a useful member of society? I don't know, but this is my goal.


My doctor seems very optimistic that we can get "years" out of a long list of treatments. We will try one until it doesn't work anymore (since at some point your body builds up a resistance to it) and then we will try another and another and another. She says she is in it for the long haul with me. She even got teary eyed when she said this to me. I truly believe she is doing all that she can and if she can't help me, I know she will lead me in the right direction of someone who can. She is very good oncologist that came to me highly recommended and almost everyone that I have come into contact with through cancer, goes to her as well. So at this point, I'm not seeking a second opinion.


I'm very fortunate in the fact that right now, I have "small volume" disease. It's in a very tiny spot on my sternum and that's it. It hasn't progressed in several months and there's no evidence of it any where else in my body. My tumor markers are very low, even lower then they were when we checked them in November. If everything stays like this, we should be able to manage the disease very well and for a long time.


Yes, I'm in shock and I'm scared. I'm angry! I'm numb! I have so many emotions to sort through right now. I need to learn how to move past this death sentence and try to live. That doesn't even make sense to me but somehow I have to do it. I want to live the best life I can. I want to be the best mom, wife, daughter, sister, niece, aunt, and friend. I don't want to be treated any different, I'm still me! You don't have to say your sorry or try to make me feel better. I'm sorry that my family and friends have to deal with this as well. It's hard for all of us but together we can manage.


I need to keep my faith. My faith that every thing happens for a reason and that God is here with me. It's really hard for me right now not to give up on this concept. At the same time I want to cling to it more. I need a miracle!

The plan now is that I continue with the zometa to help protect the bones. I'll have a infusion every month. Also every month I will be getting a shot of lupron with the goal of shutting down my ovaries. This will stop the production of estrogen and cut off the "food" supply to the cancer. Without the estrogen, we hope that the cancer cells become dormant. I will also be taking another hormone therapy drug orally everyday. Cross your fingers, pray, do a little dance....whatever it is that you do, please do it at least once for me!! I would so deeply appreciate it and I thank you with all my heart!

20 comments:

CSWBoys said...

Dearest Jual...
You don't know me, but, My friend, Amber Breeden Turner told me about you and your story about a year ago, or,a little more than that. However, I have been following your blogs since then. I am very saddened to read this latest one. I do know that God will not give you anything more you can't handle (hard for us to understand, how well I know), but, continue to trust in him and he will lead you thru this difficult time. You must remain strong and don't give up for one, yourself, your 3 beautiful children, your husband, family and friends! My mother is a Breast Cancer Survivor and my best Friend just went thru chemo/double masectomy this past year (at the young age of 29), so, in honor of Breast Cancer month and because I am an independant rep for Silpada Designs, I am donating a portion of my profits this month to the Susan G. Komen Breast Cancer Foundation and the American Cancer Society. I am doing this in honor of my mother and friend, and now, I am especially doing this for you too! Your name is now on my list and my daily prayer list as well. I will continue today and always to think of you and know that there are many many people out here thinking of you that you don't even know. God is Good, and, he WILL take care of you! Many thoughts and blessing your way... Hilary Warthan

Amber Turner said...

Dear Jual...where to begin...tears stream down my face as I read this latest entry and type this comment. It is so easy for those of us on the outside looking in to say "hang in there" or whatever....I am mad...I am mad that you have to worry about your own fate and that of your children. I am mad that there are people out there who don't give a flying hoot about life (abuse themselves, take drugs, etc) and meanwhile, I have a friend~you~who loves life, has 3 beautiful children, wonderful husband, loving extended family~and has to worry about these things. I am scared for you. But, as a Christian, I am hopeful as well. I think that hope, prayer, and faith in God is what I have to hold on to at a time like this.

I can't begin to imagine the range of emotions that you and your entire family must be going through. I wish I was there to just give you a big hug and cry with you if you needed it. Know that I am hugging you in my heart. You are in my mind and in my prayers constantly, and you and the whole family will continue to be.
Love...Amber

CohenGrl said...

Jual,
I was devasted to hear the recent news. I can't begin to imagine how you are feeling, but know that we hurt with you too. please don't apologize for us "having to deal with this as well" we are family & your support system ~ we are here for you!!
My thoughts and prayers are with you, Alex & your beautiful children during this difficult time. Stay strong & know that we are just a phone call away.
I love you Jual :)
Cheryl~

marathon mom said...

Jual- you are an amazing woman, mother, wife- your strength amazes me. We are praying for you, and are here for you, whatever you need.I am sad that you are having to face this again. Please let us know anything we can do
Love,
Jennifer

The Laymans said...

Jual,
I'm Amber Breeden Turner's first cousin, and have read your blog since the beginning. Tears are flowing as I read today...know that you and your beautiful family are in my thoughts and prayers daily.
In His Name,
Michelle Breeden Layman

Shanda Kennedy said...

Hi. I'm a total stranger. :) If I've calculated it correctly, I am a friend-of-a-friend-of-a-friend (the break down: my friend, Theresa knows your friend, Amber).
ANYway...

I know you must be feeling a whole range of emotions right now. I know you said not to say "sorry", so I'll just say that I honestly will pray for you and your family.

Cancer really does suck. It seems to strike the most wonderful and innocent people. My daughter was diagnosed with a malignant brain tumor last Halloween at the age of 20 months. It has been a long, hard road and I'm still not sure how things will end. I would welcome any random prayers you would say for us, too! ;)

May God bless you, Jual. BTW, it looks like He already has....your children are absolutely gorgeous!

Love,
Shanda Kennedy
Mommy of Gus and Calla
CarePages.com: callakennedy

Unknown said...

Dearest Jual,
I can't begin to tell you how shocked and saddened I am by the recent turn of events. Already many priests, Fr. Job in particular, are praying for a miracle. I called the Blessed Seelos Shrine in New Orleans and as of today (his feastday) your name is on a perpetual Mass list. You know I continue to pray for you, Alex, Ella, Pierce and Ryder as always. Please remember that I am always ready to help in any way I can. I love you. Stay stong.
Love,
Aunt Patti

Unknown said...

Jual
You are still the most amazing person I know. I just wanted to let you know I will try and be there for you if you ever need anything. I love you and I know God will see you thru this! I love the newest picture of you and Alex(at the ball field)! It really is a very good one! Love ya, Cecelia
P.S. The kids pictures are beautiful too (of course!)

jbthoma said...

Jual - You and your family are in my prayers. Please let me know if there is anything I can do. Your courage and faith are amazing and I can only hope that if put in a situation like you are, that I too would be able to find the strength and courage you have been able to show us all during these times. You truly are an amazing person!

Cristi said...

Dear Jual,

I just want you to know what an inspiration you are to me. Your smile despite the struggles you face daily just in living. You have challenged me to live my life more fully and to be grateful for each small blessing. I am praying for a miracle of healing for you. But in truth, YOU are a miracle Jual! You spread love to those around you and your quite strength is such an inspiration to live my life more deeply and passionately. Thank you for your LIFE Jual. Thank you for living it each day and for the light that shines from you. You are loved and prayed for. Love you! Cristi

Anonymous said...

Jual,
Reading through the comments already posted, there isn't anything I can say that has not already been said. I just wanted you to know I am thinking about you and your family.
Betty Guillie

Unknown said...

Dear Jual,
I am a very good friend of your Uncle Ray and Aunt Jenny, who has been praying for you since you were pregnant and first discovered your cancer. My daughter, Melissa, was pregnant at the same time as you with her 3rd child. I recently realized I have a second connection with you--that you were in my 2nd grade class at OLGC. I did not ever know your maiden name until last week when Melissa Grim Carrier, my daughter, (after talking to Diane Andrews), called and told me. I have followed Jual's Gems since it began and have so admired your beautiful heart, your faith, and your honesty in dealing with your disease. Alex and your beautiful children are blessed to have you, as are all of us. We will continue to pray for a miracle for you and your entire family.
Love,
Barbara Grim

Claire said...

Jual:

I believe in miracles and if anyone deserves one it is you. I pray for you and your family everyday. Don't ever give up faith. Stay strong. We love you.--Claire

Anonymous said...

For I know the plans I have for you," declares the LORD, "plans to prosper you and not to harm you, plans to give you hope and a future. Jeremiah 29:11

The Lord got you through this once and He will again. We are praying for you now and always.

In Him,

Krystal and Daniel Culpepper

Renee said...

Hi Jual.

I wanted to say how much I am distressed by this news. Casie just told me today and it just broke my heart. I had heard a similar story as yours (well so I thought) from a co-worker here in my office and then I found out that it was you she was talking about. I actually work in the same office with your Aunt Claire.
Casie sent me your blog so I hope you do not mind me sending you a blog comment. You know, it was so good to see you at the Melting Pot a couple of months back. We had such a great time and I think it is time for another girls night out!! What do you think? Melting Pot or even somewhere else, but I definitley think it is that time again! Let me know and we will make it happen :)

With Love,
Renee

Nelda said...

Jual,
I have been keeping up with your blog and in touch with you Mom. I believe in miracles and nobody deserves a miracle more than you do - it can happen. You are always in our thoughts and we love you.

Jana said...

I am a friend of Donna Andrews and she sent me an email asking me to pray for you. However crucial prayer is, I can do more to help you.

I am an R.N. who has done extensive research into alternative medicine. There is a plethora of incontrovertible evidence of the efficacy of high
dose Sodium Ascorbate (a form of Vitamin C) in killing cancer cells.

It has the added benefits of supercharging your immune system to continue to fight off new cancer cells before they have an opportunity to grow. Lastly, if you are not desirous of stopping your chemotherapy, that is okay too. The vitamin C can be adjuvant to it and it will actually decrease the adverse affects of chemo!

I URGE YOU to purchase the following book: "Curing the Incurable" (don't you love the title), by Dr. Thomas Levy, M.D. JD. Another free source of info is vitamin C foundation.com (no space between words).

Do not get discouraged if your Oncologist doesn't recommend adding this to your cancer fighting arsenal. Rather, ask her how long she has researched this avenue and encourage her to check out Entrez pubmed (NIH database) for research on this subject.

My Rosaries, Masses and Divine Mercy prayers will accompany you throughout each day!

Please do not forget that miracles still occur, especially after receiving the Anointing of the Sick.

Do not hesitate to contact me if I can be of personal assistance.

With love and prayers,
Jana
703 348 4328

Unknown said...

Jual-
Thank you for sharing your story for all of us to learn & be inspired by. Your family is in my thoughts & prayers.

It's great seeing new pictures of the kids- they are beautiful! Keep your head up- there are a lot of people rooting for you!

Love,
Ginny

John and Stacey Broughton said...

Jual~

Casie gave me your blog. We live in the same neighborhood. I will continue to check in on you and your family and pray for your complete remission.

In Him,
Stacey Broughton

AmyLynn said...

Jual,

I just wanted to let you know that you are in my thoughts and prayers. Girl, I will totally do a little dance for you! I am running the USMC marathon on 10/26. My boyfriend, and another good friend of mine joined the Leukemia and Lymphoma Soceity's Team in Traning. We have spent the summer fundraising and training, and collectively have raised over $7K to help combat blood and bone cancers. I am dedicating my 26.2 trek in 2 weeks to you. Continue to stay strong. Your fortitude is such an inspiration! Take good care. AOE (LOL), Amy Michael